Research Council expects to fund ME and CFS projects in 2020

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by Sasha Nimmo Outcomes on the remaining recommendations from the National Health and Medical Research Council (NHMRC) ME and CFS advisory committee are expected to be announced in mid-2019. Prof Anne Kelso CEO NHMRC, is deciding whether to release the report ahead of the announcements. "The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Advisory Committee Report to the NHMRC Chief … Continue reading Research Council expects to fund ME and CFS projects in 2020

Millions Missing: Melbourne

May 16, 2019 ~ ME news Australia ~ Leave a comment

Andrew gave an impassioned speech at Melbourne's Millions Missing rally, where 50 people gathered on the steps of the State Library.

Government advisor calls for more biopsychosocial research into ‘ME/CFS’

tall UNSW building with UNSW in white lettering

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by Sasha Nimmo Researchers at the University of New South Wales (UNSW), including Prof Andrew Lloyd, published a review stating there is a "need for longitudinal studies integrating biopsychosocial approaches to inform early management and targeted rehabilitation strategies". Prof Lloyd was on the government's ME and CFS advisory committee and received the majority of government … Continue reading Government advisor calls for more biopsychosocial research into ‘ME/CFS’

Millions Missing: Perth

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by ME Australia member in WA Stunning weather and a brilliant blue sky greeted everyone who gathered in the heart of Western Australia's capital city, Perth, for Millions Missing on Saturday. Former and current Greens' senators spoke about the health crisis of ME and CFS to dozens of people at Perth's International ME Awareness Day … Continue reading Millions Missing: Perth

Millions Missing: Palm Cove

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by Sally Black The original plan went out the window when numbers dwindled, #MillionsMissing T-shirt’s never arrived and I crashed, so I formed a new plan to just stick with the ME community and make it an opportunity to connect with local people affected and proposed starting a local support group here in Palm Cove, … Continue reading Millions Missing: Palm Cove

Millions Missing events

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by Sasha Nimmo Millions Missing is a global movement calling for action for ME, an underfunded and ignored disease. Australia will host its largest number of events yet! Local days of action will be held in Australia in Sydney, Melbourne, Perth and Cairns. Millions Missing was set up by ME Action and Australia first held … Continue reading Millions Missing events

Severe ME: I had to fight the people supposed to help me

young girl in eye mask lying in darkened room

Featured ~ ME news Australia ~ 11 Comments

by Sam* Sam (*not her real name) is a teenager living in Australia's largest city without access to treatment to help her. Sam was prescribed graded exercise therapy (GET) and cognitive behavioural therapy (CBT) repeatedly. After doing GET, Sam became housebound. Sam now has very severe ME and says even having a person enter the … Continue reading Severe ME: I had to fight the people supposed to help me

A Mother’s Story: Alem Matthees

May 8, 2019 ~ ME news Australia ~ 13 Comments

by Helen Donovan May 12 is Alem Matthee's birthday. Around the world, people with ME, their friends, families and scientists are grateful for Alem's work in getting trial data released, showing that graded exercise therapy and cognitive behavioural therapy did not improve health the way the study's authors claimed. In 2014 Alem filed a Freedom … Continue reading A Mother’s Story: Alem Matthees

Adelaide Oval lights up in blue for ME Awareness Week

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By Jac Creedon Since 2015, Adelaide Oval in South Australia has been lit up in blue in recognition of ME Awareness. This year, it will be illuminated on Thursday May 9. It has been organised every year by Jac Creedon, who has had ME for 28 years. Jac lives in Adelaide, along with her Jack … Continue reading Adelaide Oval lights up in blue for ME Awareness Week

Write to candidates before the election: letter template

April 25, 2019 ~ ME news Australia ~ 3 Comments

by Sasha Nimmo On Saturday 18 May a federal election will be held in Australia. This is your chance to write to local House of Representative and Senate candidates to ask them to commit to funding biomedical research into Myalgic Encephalomyelitis, or ME. Below is a sample letter to personalise or to help you write your … Continue reading Write to candidates before the election: letter template