Severe ME: ‘Took nearly 40 years to be diagnosed’

Basil the miniature fox terrier

by Sasha Nimmo Between 24,000 - 60,000 Australians have severe ME.  This is the first in a series telling the stories of Australians with severe ME. Given the wrong medical treatment and intervention harmed this patient's health to the point of no return. Disbelief by medical professionals and community care workers made life even more difficult. … Continue reading Severe ME: ‘Took nearly 40 years to be diagnosed’

Australia shouldn’t fund ‘totally inappropriate’ CBT and GET

by Sasha Nimmo In a radio interview with The Wire, Senator Scott Ludlam says Australia shouldn’t be funding research into totally inappropriate exercise regimes or therapy, “these remedies are actually counter-productive and dangerous”. The Wire, an Australian community radio current affairs program, also interviewed Emerge Australia’s president, Sally Missing, and ME patient Sasha Nimmo. The … Continue reading Australia shouldn’t fund ‘totally inappropriate’ CBT and GET

Big donations speeding up US Big Data study on severe ME and CFS patients

by Sasha Nimmo What have big donations done for the Big Data Study on severely ill patients at the Open Medicine Foundation? Last year the Open Medicine Foundation (OMF) received more than US$1,650,000 in anonymous donations towards the End ME/CFS project-Severely Ill Chronic Fatigue Syndrome Big Data Study.  Four large donations from families with loved … Continue reading Big donations speeding up US Big Data study on severe ME and CFS patients

Give your Patient Opinion (UK, IR & AUS)

by Sasha Nimmo Giving voice to opinions on health services via online forum. Many people diagnosed with ME or with chronic fatigue syndrome run into difficulties with the healthcare system, while some have great care which has improved their health. What could change for the better? Who can we tell? How do we know we have been … Continue reading Give your Patient Opinion (UK, IR & AUS)