Research update from the National Centre for Neuroimmunology and Emerging Diseases

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By Professor Sonya Marshall-Gradisnik, Professor Don Staines, Dr Helene Cabanas and the NCNED Team, Griffith University, Queensland, Australia Researchers from the National Centre for Neuroimmunology and Emerging Diseases (NCNED) at Griffith University in Queensland, Australia, have published more than 70 papers on ME and chronic fatigue syndrome. The NCNED host and present at international conferences and Prof … Continue reading Research update from the National Centre for Neuroimmunology and Emerging Diseases

Disability organisations ask for feedback on UN convention

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Disabled People’s Organisations Australia is consulting with people with disabilities via a survey seeking feedback. The survey is open until May 31, 2019. Disabled People's Organisations Australia (DPOA) is an alliance of bodies including People With Disability Australia, National Ethnic Disability Alliance, First Peoples Disability Network and Women With Disabilities Australia. DPOA says this survey is an opportunity for people … Continue reading Disability organisations ask for feedback on UN convention

Research Council expects to fund ME and CFS projects in 2020

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by Sasha Nimmo Outcomes on the remaining recommendations from the National Health and Medical Research Council (NHMRC) ME and CFS advisory committee are expected to be announced in mid-2019. Prof Anne Kelso CEO NHMRC, is deciding whether to release the report ahead of the announcements. "The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Advisory Committee Report to the NHMRC Chief … Continue reading Research Council expects to fund ME and CFS projects in 2020

Government advisor calls for more biopsychosocial research into ‘ME/CFS’

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by Sasha Nimmo Researchers at the University of New South Wales (UNSW), including Prof Andrew Lloyd, published a review stating there is a "need for longitudinal studies integrating biopsychosocial approaches to inform early management and targeted rehabilitation strategies". Prof Lloyd was on the government's ME and CFS advisory committee and received the majority of government … Continue reading Government advisor calls for more biopsychosocial research into ‘ME/CFS’

Severe ME: I had to fight the people supposed to help me

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by Sam* Sam (*not her real name) is a teenager living in Australia's largest city without access to treatment to help her. Sam was prescribed graded exercise therapy (GET) and cognitive behavioural therapy (CBT) repeatedly. After doing GET, Sam became housebound. Sam now has very severe ME and says even having a person enter the … Continue reading Severe ME: I had to fight the people supposed to help me