A study of Australian teenagers with chronic fatigue syndrome found they missed 37% more school than their peers, but their academic performace was only 6% lower.
By Sasha Nimmo Released on the Friday before Christmas, the Australia's National Health and Medical Research Advisory Commission's draft report on Myalgic Encephalomyelitis and Chronic Fatigue Syndrome is open for comment. People and organisations are encouraged to respond to the draft report by noon AEDT, Monday 18 February via the online public consultation portal. The … Continue reading NHMRC draft ME and CFS report asks for feedback
by Kathy Collett Kathy Collett has lived with Myalgic Encephalomyelitis for more than 30 years. Frustrated by the lack of knowledge and dismissive attitude of doctors, Kathy conducted her own research to see what she could do to improve her health. Pre-internet, this was difficult but Kathy persisted and travelled overseas for treatment which helped … Continue reading The Lost Years: a personal journey
by Sasha Nimmo Five Australian universities have joined together, along with the CFS Discovery Clinic, to form the ME/CFS Discovery Research Network or MDRN to collaborate and foster biomedical research into Myalgic Encephalomyelitis. The network includes: La Trobe University (including Dr Paul Fisher) University of Melbourne (including Dr Neil McGregor and Dr Chris Armstrong) Monash … Continue reading New Australian Research Network holding scientific workshop on ME
By Sasha Nimmo ‘Meet the Scientists’ is a series of interviews with researchers working on ME and chronic fatigue syndrome. We hear about current research directly from scientists and meet the people doing such important work to improve our health. The series will introduce early career researchers through to interviewing scientists and clinicians who have been working … Continue reading Meet the Scientists: Prof Sonya Marshall-Gradisnik
by Sasha Nimmo Australia’s Health Minister, Greg Hunt, listened to people with Myalgic Encephalomyelitis (ME), families, scientists and organisations. Minister Hunt had a second meeting with ME Australia, along with Prof Paul Fisher, head of microbiology at La Trobe University and Dr Heidi Nicholl, Emerge Australia on Thursday. ME Australia and Dr Chris Armstrong first … Continue reading Australia’s Health Minister listening to people with ME
By Sasha Nimmo Australians are having their concerns dismissed by GPs, receiving harmful medical advice, refused insurance claims, refused access to support services, denied access to the Disability Support Pension and the National Disability Insurance scheme. In tens of thousands of cases, they are misdiagnosed or wait decades for a diagnosis. Read these excerpts from … Continue reading Difference between Australian chronic fatigue syndrome guidelines and ME
By Sasha Nimmo An international collaboration of scientists, including Fane Mensah, Dr Jo Cambridge and Australian Dr Chris Armstrong investigated the relationship between CD24 expression and B cell maturation and found CD24 expression on B cells is related to energy metabolism and that its role differs between B cell subsets. ‘CD24 Expression and B Cell … Continue reading Study examines link between immune dysfunction and metabolism in ME
Andrew talks about his experience on SBS Insight: how the show focussed on recovered sports stars and exercise clinics while he was told to 'let others speak' when he tried to talk.
Macquarie University are recruiting people with chronic fatigue syndrome, fibromyalgia, gastrointestinal disorders and multiple chemical sensitivity for a study measuring somatic symptoms, hypochondria, anxiety and depression, catastophising and co-morbid diseases.