By Sasha Nimmo Australians are having their concerns dismissed by GPs, receiving harmful medical advice, refused insurance claims, refused access to support services, denied access to the Disability Support Pension and the National Disability Insurance scheme. In tens of thousands of cases, they are misdiagnosed or wait decades for a diagnosis. Read these excerpts from … Continue reading Difference between Australian chronic fatigue syndrome guidelines and ME
By Sasha Nimmo An international collaboration of scientists, including Fane Mensah, Dr Jo Cambridge and Australian Dr Chris Armstrong investigated the relationship between CD24 expression and B cell maturation and found CD24 expression on B cells is related to energy metabolism and that its role differs between B cell subsets. ‘CD24 Expression and B Cell … Continue reading Study examines link between immune dysfunction and metabolism in ME
Andrew talks about his experience on SBS Insight: how the show focussed on recovered sports stars and exercise clinics while he was told to 'let others speak' when he tried to talk.
Macquarie University are recruiting people with chronic fatigue syndrome, fibromyalgia, gastrointestinal disorders and multiple chemical sensitivity for a study measuring somatic symptoms, hypochondria, anxiety and depression, catastophising and co-morbid diseases.
The governement's ME and CFS advisory committee are one meeting away from releasing their report for feedback. The NHMRC is now listing resources for clinicians which include CBT, exercise and antidepressants.
Meet the Scientists: Dr Alice Richardson, biostatistician from the ANU. Her work is helping diagnose and identify sub-groups of patients with ME.
European researchers have examined the evidence that ME may be an autoimmune disease, stating "disease onset is often reported to be triggered by infections and the link between infections and autoimmune diseases is well established". A group of German scientists tested this theory, using a process called immunoadsorption to remove antibodies in 10 people with ME.
by Sasha Nimmo Emerge Australia has been given $370,000 by the federal government in a grant for a research symposium, health and well-being surveys and to support people with Myalgic Encephalomyelitis and chronic fatigue syndrome. "We're really focusing on developing and delivering a lot of high quality support services as a result of this funding. We … Continue reading Emerge Australia given $370,000 government grant
by Sasha Nimmo Australian scientists at the National Centre for Neuroimmunlogy and Emerging Diseases at Griffith University published a new paper on reduced intracellular calcium mobilisation in Natural Killer (NK) immune cells and Transient Receptor Potential Melastatin 3 (TRPM3) cation channels. Authors say it 'could suggest potential therapeutic targets and/or prognostic markers'. 'Loss of Transient Receptor … Continue reading Impaired intracellular calcium transfer affecting Natural Killer cells in ME
by Sasha Nimmo The Medical Research Future Fund (MRFF) is holding a national consultation to ask Australians about what the priorities of the fund should be from 2018-2020. The first set of MRFF Priorities expire on 8 November 2018. There is an opportunity for everyone to make a submission using the form on the website. The consultation … Continue reading Last days to have your say: Medical Research Future Fund