by Sasha Nimmo Senior staff from Australia's National Disability Insurance Agency (NDIA) met with Emerge Australia and ME Australia to see how they can better support people who have ME and CFS. Encouragingly, this seems to be the start of a more broad consultation approach. At the meeting, we discussed access to the scheme, how permanent … Continue reading Disability agency consults on ME and CFS
Melbourne based scientists have just published a study finding activin B is a biomarker for myalgic encephalomyelitis/chronic fatigue syndrome (MECFS) using the Canadian Consensus Criteria.
by Sasha Nimmo Queensland's Griffith University is home to the National Centre for Neuroimmunology and Emerging Diseases (NCNED), one of the leading centres for research in ME and chronic fatigue syndrome. They've been in the news lately for their patented biomarker discovery on calcium channel ion defects in patients. The words 'breakthrough' and 'finally' have … Continue reading Calcium channel ion defects: research from Australia’s Griffith Uni
by Sasha Nimmo Between 24,000 - 60,000 Australians have severe ME. This is the first in a series telling the stories of Australians with severe ME. Given the wrong medical treatment and intervention harmed this patient's health to the point of no return. Disbelief by medical professionals and community care workers made life even more difficult. … Continue reading Severe ME: ‘Took nearly 40 years to be diagnosed’
by Sasha Nimmo Around 38% of Australians diagnosed with chronic fatigue syndrome (CFS) and Myalgic Encephalomyelitis (ME) do not meet the Fukuda chronic fatigue syndrome definition used by the US government. More than two-thirds don't meet the International Consensus Criteria for Myalgic Encephalomyelitis (ICC ME). Australia has no national clinical guidelines but patient organisations endorse the ICC or … Continue reading Australia: 2 in 5 chronic fatigue syndrome diagnoses wrong, worse for ME
March 2015 has been a busy month for biomarker discoveries for patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: two new papers published and one patent registered.
Australia needs to leave behind ME/CFS and CFS/ME. Why is it important to use ME and CFS?
by Sasha Nimmo A recent paper begins “there has been considerable controversy regarding how to name and define the illnesses known as myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS).” ‘Case definitions integrating empiric and consensus perspectives‘ by Jason, McManimen Sunnquist, Brown, Furst, Newton & Strand was published in Fatigue: Biomedicine, Health and Behaviour. ‘Empiric’ means … Continue reading Study says scientists must agree on classifying patients
by Sasha Nimmo Australian scientists announce they have made a breakthrough in chronic fatigue syndrome testing, now looking for partners to bring a diagnostic test to market. An ABC radio interview with Australian scientists at Queensland’s Griffith University reveals they have identified new markers on white blood cells which can be used to screen chronic fatigue syndrome patients. … Continue reading Griffith Uni patents chronic fatigue syndrome diagnostic blood test