by Sasha Nimmo National Health and Medical Research Council's Chief Executive Officer, Prof Anne Kelso, today released her response the ME and CFS advisory committee's report. Prof Kelso has decided that the NHMRC should develop clinical guidance on ME/CFS. This is a major decision as the current guidelines were condemned by the Senate and organisations … Continue reading Medical council agrees new guidelines are needed
By ME Australia Australians with Myalgic Encephalomyelitis and chronic fatigue syndrome are having their disability support pension, NDIS, superannuation and other requests for help denied due to the current Australian chronic fatigue syndrome guidelines, published back in 2002. Myalgic Encephalomyelitis affects between 0.4 and 1 per cent of the population, including children, and one quarter … Continue reading Failure to update medical guidelines see people with ME denied disability support
by Sasha Nimmo Senator Jordon Steele-John this week announced the Australian Greens' policy on Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS), planning to commit $15 million to biomedical research, a national summit, better access to the National Disability Insurance Scheme (NDIS) and money for advocacy organisations. This policy is welcomed by the ME and CFS … Continue reading Greens announce ME and CFS policy
by Sasha Nimmo Senior staff from Australia's National Disability Insurance Agency (NDIA) met with Emerge Australia and ME Australia to see how they can better support people who have ME and CFS. Encouragingly, this seems to be the start of a more broad consultation approach. At the meeting, we discussed access to the scheme, how permanent … Continue reading Disability agency consults on ME and CFS
By Sasha Nimmo Australian research is underfunded and the government's clinical guidelines are outdated so the ME and CFS advisory committee is welcomed. It provides an important opportunity to call on the government to fund biomedical research and to give Australian doctors desperately needed clinical guidance. The advice from this committee will determine if diagnostic … Continue reading Making the most of the NHMRC advisory committee
