by Sally Black The original plan went out the window when numbers dwindled, #MillionsMissing T-shirt’s never arrived and I crashed, so I formed a new plan to just stick with the ME community and make it an opportunity to connect with local people affected and proposed starting a local support group here in Palm Cove, … Continue reading Millions Missing: Palm Cove
by Sasha Nimmo Queensland's Griffith University is home to the National Centre for Neuroimmunology and Emerging Diseases (NCNED), one of the leading centres for research in ME and chronic fatigue syndrome. They've been in the news lately for their patented biomarker discovery on calcium channel ion defects in patients. The words 'breakthrough' and 'finally' have … Continue reading Calcium channel ion defects: research from Australia’s Griffith Uni
by Sasha Nimmo Myalgic Encephalomyelitis is estimated to affect between 0.4% and 1% of the population, according to the International Consensus Criteria primer for medical practitioners, endorsed by Australian patient organisations. In Australia, that is between 96,700 and 241,800 people (ABS population figures). Of those, 25% are so severely affected that they cannot leave their homes or … Continue reading Severe ME: Suffering ignored and denied help
Need a kick-start to writing a letter? This is a letter template to help you write to politicians and bring attention to the issue of support for people with ME and CFS.