by Sasha Nimmo ‘Meet the Scientists’ is a series, interviewing researchers working on ME and chronic fatigue syndrome. We hear about current research directly from scientists and meet the people doing such important work to improve our health. The series will introduce early career researchers through to interviewing scientists and clinicians who have been working on the … Continue reading Meet the Scientists: Dr Sarah Knight
Ask the medical research council to fund research into ME and CFS, here's a letter template to send to the NHMRC.
by Sasha Nimmo A recent paper begins “there has been considerable controversy regarding how to name and define the illnesses known as myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS).” ‘Case definitions integrating empiric and consensus perspectives‘ by Jason, McManimen Sunnquist, Brown, Furst, Newton & Strand was published in Fatigue: Biomedicine, Health and Behaviour. ‘Empiric’ means … Continue reading Study says scientists must agree on classifying patients
by Sasha Nimmo Australian scientists announce they have made a breakthrough in chronic fatigue syndrome testing, now looking for partners to bring a diagnostic test to market. An ABC radio interview with Australian scientists at Queensland’s Griffith University reveals they have identified new markers on white blood cells which can be used to screen chronic fatigue syndrome patients. … Continue reading Griffith Uni patents chronic fatigue syndrome diagnostic blood test
by Sasha Nimmo Large controversial UK study refusing to release data: PACE trial The authors of a £5 million trial into cognitive behavior therapy and graded exercise therapy again refused to release the data to scientists who wanted to examine it. The Queen Mary University of London believe it to be exempt from Freedom of … Continue reading UK study refuses to release data: PACE trial
by Sasha Nimmo Most of the $2.4 million in research the government says is for ME or CFS is spent on research into psychology, exercise or for other conditions such as hepatitis C. No studies funded in a decade. This the second story in the series, here is the first. For Australia’s 94,000 to 242,000 … Continue reading Australian Health Department answers questions on ME
by Sasha Nimmo New case definition and biomarkers suggested from Australia’s Deakin University: Neuro-Inflammatory and Oxidative Fatigue An Australian university is suggesting a new name to replace ME/CFS. The new name is Neuro-Inflammatory and Oxidative Fatigue or NIOF, after they studied 196 subjects with CFS (CDC criteria) and 83 with chronic fatigue and found two distinct groups. … Continue reading Study proposes new name, definition and biomarkers for chronic fatigue syndrome
by Sasha Nimmo If you live in the electorate of North Sydney, or have friends or family who do, please contact the election’s candidates this week with your suggestions about what you’d like to see for people with ME and your experiences with the NSW health care system. The by-election is on Saturday 5 December, 2015. Below is … Continue reading Australia: Write to North Sydney By-election candidates
Why haven't we heard more about PACE's sister study? "The bastards don't want to get better"
by Sasha Nimmo An Australian university’s longitudinal study into immune changes in people with chronic fatigue syndrome (CFS) may lead to diagnostic test. Griffith University researchers have looked at the immune systems of patients with moderate and severe CFS (1994 Fukuda criteria) once, then again six months later. The study has just been published in the Journal of … Continue reading Study shows immune differences in moderate and severe chronic fatigue syndrome (Fukuda criteria)