ME is a disease that places a significant burden on up to 250,000 Australians and their families. There is currently no treatment or cure. The lack of meaningful biomedical research funding for ME, means patients and their families will wait longer for diagnostic tools, treatment and a cure.
While waiting for a cure, often the situation for people, especially those with severe ME is dire. People with ME are struggling to get appropriate primary health care to manage their symptoms and have problems accessing support to do things most people take for granted. Alongside meaningful biomedical research funding, creating Australian clinical guidelines for ME is key for people to receive appropriate primary care and to access services.
ME Australia is working alongside other organisations and individuals, to bring forward change to improve the lives of these often neglected Australians and their families. Contact us if you would like to work with us to achieve change.