My Severe ME Story
This is my severe ME story. What was your life like before you got sick? I was a full-time practising
May 11, 2020
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Around one in four people with Myalgic Encephalomyelitis (ME), are house bound or bed bound. People with severe ME need help to care for themselves and complete minimal daily tasks (e.g. cleaning teeth). They can experience significant cognitive impairment and may depend on a wheelchair for mobility.
In very rare circumstances, complications from ME for people in severe subgroups has resulted in death. In Australia, Alison Hunter died in 1996, aged 19, from complications arising from ME, which included seizures, paralysis, gastrointestinal paresis and overwhelming infection.
The stories below focus on the challenges and experiences of people with severe ME.
This is my severe ME story. What was your life like before you got sick? I was a full-time practising
by Sam* Sam (*not her real name) is a teenager living in Australia’s largest city without access to treatment to
by Helen Donovan May 12 is Alem Matthee’s birthday. Around the world, people with ME, their friends, families and scientists
By Christine Hunter For the past decade patients diagnosed with chronic fatigue syndrome have been shamefully mistreated due to government
by Sasha Nimmo Between 24,000 – 60,000 Australians have severe ME. This is the first in a series telling the
by Sasha Nimmo Myalgic Encephalomyelitis is estimated to affect between 0.4% and 1% of the population, according to the International Consensus
by Sasha Nimmo An Australian university’s longitudinal study into immune changes in people with chronic fatigue syndrome (CFS) may lead
© 2021 ME Australia. All Rights Reserved.