Medical council agrees new guidelines are needed

NHRMC letterhead with logo

by Sasha Nimmo National Health and Medical Research Council's Chief Executive Officer, Prof Anne Kelso, today released her response the ME and CFS advisory committee's report. Prof Kelso has decided that the NHMRC should develop clinical guidance on ME/CFS. This is a major decision as the current guidelines were condemned by the Senate and organisations … Continue reading Medical council agrees new guidelines are needed

Draft report wrongly claims 99% recover from chronic fatigue syndrome and ME

Draft for Public Consultation - report to the NHMRC CEO

By Sasha Nimmo and ME Australia Australia's National Health and Medical Research Council (NHMRC) called for feedback on their advisory committee's draft report at the end of 2018. The report contained misleading errors, stating 99% of people recover (except in cases lasting more than seven years, the report claims the recovery rate is 50-80%). This … Continue reading Draft report wrongly claims 99% recover from chronic fatigue syndrome and ME

Australia’s medical research council questioned on ME and CFS committee

Senator Griff at Senate Estimates

By Sasha Nimmo Australia's National Health and Medical Research Council (NHMRC) answered questions from Greens, Centre Alliance and Labor senators at Senate Estimates budget hearings. Senator Griff asked if they would add experts in biomedical research to the ME and CFS advisory committee. Senator Steele-John asked if it would be concerning if a member of … Continue reading Australia’s medical research council questioned on ME and CFS committee

Making the most of the NHMRC advisory committee

chairs at a boardroom-style table with blank notepads

By Sasha Nimmo Australian research is underfunded and the government's clinical guidelines are outdated so the ME and CFS advisory committee is welcomed. It provides an important opportunity to call on the government to fund biomedical research and to give Australian doctors desperately needed clinical guidance. The advice from this committee will determine if diagnostic … Continue reading Making the most of the NHMRC advisory committee

Australian government’s ME and CFS advisory committee

NHMRC logo - white text on blue background with crest

By Sasha Nimmo Australia's National Health and Medical Research Council (NHMRC) appointed  group of medical professionals and people representing people with Myalgic Encephalomyelitis and chronic fatigue syndrome to a ME and CFS advisory committee. The committee, who have begun meeting, will advise the government on current research, gaps in research and whether the 2002 clinical … Continue reading Australian government’s ME and CFS advisory committee

Chronic Fatigue Syndrome Advisory Committee (USA) recommendations

by Sasha Nimmo USA’s Advisory Committee wants bigger research aimed at finding diagnostic tests, using Canadian Consensus Criteria and private-public partnerships to find drug treatments.  In August 2015, the Chronic Fatigue Syndrome Advisory Committee (CFSAC) made recommendations to the United States government in its role advising the Secretary of Health and Human Services.  It met to summarise the recommendations … Continue reading Chronic Fatigue Syndrome Advisory Committee (USA) recommendations