By Sasha Nimmo Australians are having their concerns dismissed by GPs, receiving harmful medical advice, refused insurance claims, refused access to support services, denied access to the Disability Support Pension and the National Disability Insurance scheme. In tens of thousands of cases, they are misdiagnosed or wait decades for a diagnosis. Read these excerpts from … Continue reading Difference between Australian chronic fatigue syndrome guidelines and ME
by Sasha Nimmo Around 38% of Australians diagnosed with chronic fatigue syndrome (CFS) and Myalgic Encephalomyelitis (ME) do not meet the Fukuda chronic fatigue syndrome definition used by the US government. More than two-thirds don't meet the International Consensus Criteria for Myalgic Encephalomyelitis (ICC ME). Australia has no national clinical guidelines but patient organisations endorse the ICC or … Continue reading Australia: 2 in 5 chronic fatigue syndrome diagnoses wrong, worse for ME
Australia needs to leave behind ME/CFS and CFS/ME. Why is it important to use ME and CFS?
by Sasha Nimmo A recent paper begins “there has been considerable controversy regarding how to name and define the illnesses known as myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS).” ‘Case definitions integrating empiric and consensus perspectives‘ by Jason, McManimen Sunnquist, Brown, Furst, Newton & Strand was published in Fatigue: Biomedicine, Health and Behaviour. ‘Empiric’ means … Continue reading Study says scientists must agree on classifying patients
by Sasha Nimmo Norwegian researchers asked ‘What exactly is myalgic encephalomyelitis?’ and found it is not the same as chronic fatigue syndrome. Broad criteria results in misdiagnosis and incorrect treatment. Researchers need narrower criteria to develop effective treatments. Myalgic encephalomyelitis is a “reasonably well-defined disorder with distinct clinical characteristics”, according to research published in October … Continue reading Norwegian researchers ask ‘What exactly is M.E.?’