Severe ME: Suffering ignored and denied help

woman in bed with arm shading face

by Sasha Nimmo Myalgic Encephalomyelitis is estimated to affect between 0.4% and 1% of the population, according to the International Consensus Criteria primer for medical practitioners, endorsed by Australian patient organisations. In Australia, that is between 96,700 and 241,800 people (ABS population figures). Of those, 25% are so severely affected that they cannot leave their homes or … Continue reading Severe ME: Suffering ignored and denied help

Give your Patient Opinion (UK, IR & AUS)

by Sasha Nimmo Giving voice to opinions on health services via online forum. Many people diagnosed with ME or with chronic fatigue syndrome run into difficulties with the healthcare system, while some have great care which has improved their health. What could change for the better? Who can we tell? How do we know we have been … Continue reading Give your Patient Opinion (UK, IR & AUS)