by Sasha Nimmo Australia's federal government now has a $3 million grant round open, calling for research into ME and chronic fatigue syndrome. $3 million over three years is a huge increase on previous spending, yet is a tiny proportion of the $9 billion the government is spending on medical research over 10 years. After … Continue reading $3m funding round opens and Senator questions how they will avoid funding harmful therapies
by Sasha Nimmo Australia's Mason Foundation is now calling for research submissions into ME. The grants are for up to $120,000 a year for up to three years. The Mason Foundation grants will support research projects that 'focus on Myalgic encephalomyelitis/chronic fatigue syndrome' and specify that the Canadian or International Consensus Criteria for ME, or the Jason … Continue reading Mason Foundation funding rounds now open
by Sasha Nimmo Outcomes on the remaining recommendations from the National Health and Medical Research Council (NHMRC) ME and CFS advisory committee are expected to be announced in mid-2019. Prof Anne Kelso CEO NHMRC, is deciding whether to release the report ahead of the announcements. "The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Advisory Committee Report to the NHMRC Chief … Continue reading Research Council expects to fund ME and CFS projects in 2020
by Sasha Nimmo The Medical Research Future Fund (MRFF) is holding a national consultation to ask Australians about what the priorities of the fund should be from 2018-2020. The first set of MRFF Priorities expire on 8 November 2018. There is an opportunity for everyone to make a submission using the form on the website. The consultation … Continue reading Last days to have your say: Medical Research Future Fund
We asked them to stop the trial and they said 'no'. Australia's Health Minister responds to our petition asking them to cease graded exercise trial on chronic fatigue syndrome patients at UNSW.
Parliament was told that 75% of Australians with ME and CFS recover. The real figure is closer to 5%.
Why would the government allocate funding for medical research and treatment if it is told that most patients recover without it?
Ask the medical research council to fund research into ME and CFS, here's a letter template to send to the NHMRC.
Need a kick-start to writing a letter? This is a letter template to help you write to politicians and bring attention to the issue of support for people with ME and CFS.
by Sasha Nimmo In a radio interview with The Wire, Senator Scott Ludlam says Australia shouldn’t be funding research into totally inappropriate exercise regimes or therapy, “these remedies are actually counter-productive and dangerous”. The Wire, an Australian community radio current affairs program, also interviewed Emerge Australia’s president, Sally Missing, and ME patient Sasha Nimmo. The … Continue reading Australia shouldn’t fund ‘totally inappropriate’ CBT and GET
by Sasha Nimmo If you live in the electorate of North Sydney, or have friends or family who do, please contact the election’s candidates this week with your suggestions about what you’d like to see for people with ME and your experiences with the NSW health care system. The by-election is on Saturday 5 December, 2015. Below is … Continue reading Australia: Write to North Sydney By-election candidates