by Sasha Nimmo Outcomes on the remaining recommendations from the National Health and Medical Research Council (NHMRC) ME and CFS advisory committee are expected to be announced in mid-2019. Prof Anne Kelso CEO NHMRC, is deciding whether to release the report ahead of the announcements. "The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Advisory Committee Report to the NHMRC Chief … Continue reading Research Council expects to fund ME and CFS projects in 2020
by Sasha Nimmo The Medical Research Future Fund (MRFF) is holding a national consultation to ask Australians about what the priorities of the fund should be from 2018-2020. The first set of MRFF Priorities expire on 8 November 2018. There is an opportunity for everyone to make a submission using the form on the website. The consultation … Continue reading Last days to have your say: Medical Research Future Fund
We asked them to stop the trial and they said 'no'. Australia's Health Minister responds to our petition asking them to cease graded exercise trial on chronic fatigue syndrome patients at UNSW.
Parliament was told that 75% of Australians with ME and CFS recover. The real figure is closer to 5%. Why would the government allocate funding for medical research and treatment if it is told that most patients recover without it?
Ask the medical research council to fund research into ME and CFS, here's a letter template to send to the NHMRC.
Need a kick-start to writing a letter? This is a letter template to help you write to politicians and bring attention to the issue of support for people with ME and CFS.
by Sasha Nimmo In a radio interview with The Wire, Senator Scott Ludlam says Australia shouldn’t be funding research into totally inappropriate exercise regimes or therapy, “these remedies are actually counter-productive and dangerous”. The Wire, an Australian community radio current affairs program, also interviewed Emerge Australia’s president, Sally Missing, and ME patient Sasha Nimmo. The … Continue reading Australia shouldn’t fund ‘totally inappropriate’ CBT and GET
by Sasha Nimmo If you live in the electorate of North Sydney, or have friends or family who do, please contact the election’s candidates this week with your suggestions about what you’d like to see for people with ME and your experiences with the NSW health care system. The by-election is on Saturday 5 December, 2015. Below is … Continue reading Australia: Write to North Sydney By-election candidates
by Sasha Nimmo Senator Ludlam on ME: “I am struggling to think of a cohort of people in our community that large for whom there is so little”. This is the first story in the series, more news was published in February 2016. West Australian Senator and deputy leader of the Greens party, Scott Ludlam, asked the … Continue reading Australian senator questions government on lack of action on ME
by Sasha Nimmo USA’s Advisory Committee wants bigger research aimed at finding diagnostic tests, using Canadian Consensus Criteria and private-public partnerships to find drug treatments. In August 2015, the Chronic Fatigue Syndrome Advisory Committee (CFSAC) made recommendations to the United States government in its role advising the Secretary of Health and Human Services. It met to summarise the recommendations … Continue reading Chronic Fatigue Syndrome Advisory Committee (USA) recommendations