Australia needs to leave behind ME/CFS and CFS/ME. Why is it important to use ME and CFS?
by Sasha Nimmo In a radio interview with The Wire, Senator Scott Ludlam says Australia shouldn’t be funding research into totally inappropriate exercise regimes or therapy, “these remedies are actually counter-productive and dangerous”. The Wire, an Australian community radio current affairs program, also interviewed Emerge Australia’s president, Sally Missing, and ME patient Sasha Nimmo. The … Continue reading Australia shouldn’t fund ‘totally inappropriate’ CBT and GET
by Sasha Nimmo What have big donations done for the Big Data Study on severely ill patients at the Open Medicine Foundation? Last year the Open Medicine Foundation (OMF) received more than US$1,650,000 in anonymous donations towards the End ME/CFS project-Severely Ill Chronic Fatigue Syndrome Big Data Study. Four large donations from families with loved … Continue reading Big donations speeding up US Big Data study on severe ME and CFS patients
by Sasha Nimmo Senator asks medical research council about ‘remarkably small amount of funding since 2000’ and if they are funding graded exercise therapy (GET) or cognitive behavioural therapy (CBT) for ME and chronic fatigue syndrome. This is the third article in the series. Here is the first (November 2015) and the second (February 2016) Australia … Continue reading Australian Health Department pins its hopes on overseas research instead of funding our own
by Sasha Nimmo New case definition and biomarkers suggested from Australia’s Deakin University: Neuro-Inflammatory and Oxidative Fatigue An Australian university is suggesting a new name to replace ME/CFS. The new name is Neuro-Inflammatory and Oxidative Fatigue or NIOF, after they studied 196 subjects with CFS (CDC criteria) and 83 with chronic fatigue and found two distinct groups. … Continue reading Study proposes new name, definition and biomarkers for chronic fatigue syndrome
by Sasha Nimmo Senator Ludlam on ME: “I am struggling to think of a cohort of people in our community that large for whom there is so little”. This is the first story in the series, more news was published in February 2016. West Australian Senator and deputy leader of the Greens party, Scott Ludlam, asked the … Continue reading Australian senator questions government on lack of action on ME
by Sasha Nimmo USA’s Advisory Committee wants bigger research aimed at finding diagnostic tests, using Canadian Consensus Criteria and private-public partnerships to find drug treatments. In August 2015, the Chronic Fatigue Syndrome Advisory Committee (CFSAC) made recommendations to the United States government in its role advising the Secretary of Health and Human Services. It met to summarise the recommendations … Continue reading Chronic Fatigue Syndrome Advisory Committee (USA) recommendations
by Sasha Nimmo Neurological biomarkers in paediatric ME/CFS (Canadian Consensus Criteria) ME Research UK is contributing nearly $100,000 (£46,000) to a study looking for neurological biomarkers in adolescents with ME/CFS. Murdoch Children’s Research Institute, at The Royal Children’s Hospital in the University of Melbourne, Australia is conducting the study. It will study 25 adolescents diagnosed … Continue reading Australian neurological research into adolescents with ME/CFS (CCC)