Severe ME: ‘Took nearly 40 years to be diagnosed’

Basil the miniature fox terrier

by Sasha Nimmo Between 24,000 - 60,000 Australians have severe ME.  This is the first in a series telling the stories of Australians with severe ME. Given the wrong medical treatment and intervention harmed this patient's health to the point of no return. Disbelief by medical professionals and community care workers made life even more difficult. … Continue reading Severe ME: ‘Took nearly 40 years to be diagnosed’

Australia: 2 in 5 chronic fatigue syndrome diagnoses wrong, worse for ME

Griffith University building by night

by Sasha Nimmo Around 38% of Australians diagnosed with chronic fatigue syndrome (CFS) and Myalgic Encephalomyelitis (ME) do not meet the Fukuda chronic fatigue syndrome definition used by the US government. More than two-thirds don't meet the International Consensus Criteria for Myalgic Encephalomyelitis (ICC ME). Australia has no national clinical guidelines but patient organisations endorse the ICC or … Continue reading Australia: 2 in 5 chronic fatigue syndrome diagnoses wrong, worse for ME

Norwegian researchers ask ‘What exactly is M.E.?’

by Sasha Nimmo Norwegian researchers asked ‘What exactly is myalgic encephalomyelitis?’ and found it is not the same as chronic fatigue syndrome. Broad criteria results in misdiagnosis and incorrect treatment. Researchers need narrower criteria to develop effective treatments. Myalgic encephalomyelitis is a “reasonably well-defined disorder with distinct clinical characteristics”, according to research published in October … Continue reading Norwegian researchers ask ‘What exactly is M.E.?’