Ask UNSW to cancel CBT/GET training chronic fatigue syndrome study

by Sasha Nimmo Write to the University of NSW and ask them not to allow this trial to proceed: contact the ethics department via email: ted.rohr@unsw.edu.au, humanethics@unsw.edu.au and the study's contact s.h.li@unsw.edu.au . You may wish to also contact the administrator of the Mason Foundation, who are funding the work, charities@eqt.com.au  There is a proposed study/trial starting in 2016 … Continue reading Ask UNSW to cancel CBT/GET training chronic fatigue syndrome study

UK study refuses to release data: PACE trial

by Sasha Nimmo Large controversial UK study refusing to release data: PACE trial The authors of a £5 million trial into cognitive behavior therapy and graded exercise therapy again refused to release the data to scientists who wanted to examine it. The Queen Mary University of London believe it to be exempt from Freedom of … Continue reading UK study refuses to release data: PACE trial

Norwegian researchers ask ‘What exactly is M.E.?’

by Sasha Nimmo Norwegian researchers asked ‘What exactly is myalgic encephalomyelitis?’ and found it is not the same as chronic fatigue syndrome. Broad criteria results in misdiagnosis and incorrect treatment. Researchers need narrower criteria to develop effective treatments. Myalgic encephalomyelitis is a “reasonably well-defined disorder with distinct clinical characteristics”, according to research published in October … Continue reading Norwegian researchers ask ‘What exactly is M.E.?’