Parliament was told that 75% of Australians with ME and CFS recover. The real figure is closer to 5%. Why would the government allocate funding for medical research and treatment if it is told that most patients recover without it?
The Australian federal government is spending the ME and CFS research budget on training medical professionals to use cognitive behavioural therapy and graded exercise therapy on patients in Australia and internationally, despite the fact these therapies show no benefit and may do harm.
by Sasha Nimmo Online public consultation on the second draft National Strategic Framework for Chronic Conditions is now open. This only happens once a decade so make your voice heard! A National Strategic Framework for Chronic Conditions is being developed by the Australian Government Department of Health in partnership with states and territories, under the auspice … Continue reading Input to the National Strategic Framework for Chronic Conditions
Need a kick-start to writing a letter? This is a letter template to help you write to politicians and bring attention to the issue of support for people with ME and CFS.
by Sasha Nimmo In a radio interview with The Wire, Senator Scott Ludlam says Australia shouldn’t be funding research into totally inappropriate exercise regimes or therapy, “these remedies are actually counter-productive and dangerous”. The Wire, an Australian community radio current affairs program, also interviewed Emerge Australia’s president, Sally Missing, and ME patient Sasha Nimmo. The … Continue reading Australia shouldn’t fund ‘totally inappropriate’ CBT and GET
by Sasha Nimmo Senator asks medical research council about ‘remarkably small amount of funding since 2000’ and if they are funding graded exercise therapy (GET) or cognitive behavioural therapy (CBT) for ME and chronic fatigue syndrome. This is the third article in the series. Here is the first (November 2015) and the second (February 2016) Australia … Continue reading Australian Health Department pins its hopes on overseas research instead of funding our own
by Sasha Nimmo Large controversial UK study refusing to release data: PACE trial The authors of a £5 million trial into cognitive behavior therapy and graded exercise therapy again refused to release the data to scientists who wanted to examine it. The Queen Mary University of London believe it to be exempt from Freedom of … Continue reading UK study refuses to release data: PACE trial
by Sasha Nimmo Most of the $2.4 million in research the government says is for ME or CFS is spent on research into psychology, exercise or for other conditions such as hepatitis C. No studies funded in a decade. This the second story in the series, here is the first. For Australia’s 94,000 to 242,000 … Continue reading Australian Health Department answers questions on ME
by Sasha Nimmo Senator Ludlam on ME: “I am struggling to think of a cohort of people in our community that large for whom there is so little”. This is the first story in the series, more news was published in February 2016. West Australian Senator and deputy leader of the Greens party, Scott Ludlam, asked the … Continue reading Australian senator questions government on lack of action on ME