by Sasha Nimmo On Saturday 18 May a federal election will be held in Australia. This is your chance to write to local House of Representative and Senate candidates to ask them to commit to funding biomedical research into Myalgic Encephalomyelitis, or ME. Below is a sample letter to personalise or to help you write your … Continue reading Write to candidates before the election: letter template
by Sasha Nimmo Senator Jordon Steele-John this week announced the Australian Greens' policy on Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS), planning to commit $15 million to biomedical research, a national summit, better access to the National Disability Insurance Scheme (NDIS) and money for advocacy organisations. This policy is welcomed by the ME and CFS … Continue reading Greens announce ME and CFS policy
by Sasha Nimmo Australia's Health Minister, Greg Hunt, announced $3 million in medical research funding. In 2018-19 the government will spend $6 billion on Australia’s health and medical research sector. The Minister said funding will 'help researchers develop a better understanding of the cause and condition of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)'. This comes after … Continue reading Australian government announces $3 million for medical research
by Sasha Nimmo Australia’s Health Minister, Greg Hunt, listened to people with Myalgic Encephalomyelitis (ME), families, scientists and organisations. Minister Hunt had a second meeting with ME Australia, along with Prof Paul Fisher, head of microbiology at La Trobe University and Dr Heidi Nicholl, Emerge Australia on Thursday. ME Australia and Dr Chris Armstrong first … Continue reading Australia’s Health Minister listening to people with ME
by Sasha Nimmo Three senators have formed a Parliamentary Friends of Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) group in Australia's federal parliament. The Parliamentary Friendship group is co-chaired by Western Australian Greens Senator Jordon Steele-John, Tasmanian Liberal Senator Jonathan Duniam and Queensland Labor Senator Claire Moore. This group will provide a forum for … Continue reading Friends in Australia’s parliament for people with ME and chronic fatigue syndrome
by Sasha Nimmo The Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) patient and research communities are delighted the Australian parliament officially recognise the urgent need for biomedical research in the field. Senator Anne Urquhart, a Tasmanian Labor senator, (on behalf of her colleague Senator Helen Polley) and Senator Stirling Griff, a Centre Alliance senator … Continue reading Boost for people with ME and chronic fatigue syndrome thanks to Parliament
by Sasha Nimmo Australia's National Health and Medical Research Council (NHMRC) says it plans to spend $3-5 million dollars over three to five years on funding targeted research into ME (myalgic encephalomyelitis) and chronic fatigue syndrome. This would be a huge increase, as the NHMRC have not funded a study since 2005. The NHRMC said it … Continue reading Australia’s medical research council promises ‘serious exploration’ of research for ME within months
by Sasha Nimmo Senator Scott Ludlam asked about the progress of proposals to research ME and CFS at last night's budget estimates hearing in Parliament House, Canberra. Prof Anne Kelso, CEO of Australia's National Health and Medical Research Council (NHMRC), said she was delighted to hear of the important advance made by Griffith University but explained they may not … Continue reading Australian government seeking expert advice on ME and CFS research grants
We asked them to stop the trial and they said 'no'. Australia's Health Minister responds to our petition asking them to cease graded exercise trial on chronic fatigue syndrome patients at UNSW.
Parliament was told that 75% of Australians with ME and CFS recover. The real figure is closer to 5%. Why would the government allocate funding for medical research and treatment if it is told that most patients recover without it?