Global petition: xBox dance and sports video gaming to increase activity in CFS

screenshot of petition on MEAction - 'Stop dangerous and unscientific xbox study in South Australia' and picture of video game being used by a woman with her back to us

By Sasha Nimmo People are protesting the University of South Australia's study 'A pilot study exploring pacing to increase physical activity: Is active video gaming a feasible and acceptable strategy for adults with Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS)?', join them and sign the petition to protest against poor quality science now. The petition is … Continue reading Global petition: xBox dance and sports video gaming to increase activity in CFS

Response from the Mason Foundation: Petition to stop graded exercise therapy trial

man lying down eye closed

More than 700 people signed the petition to ask the Mason Foundation and the University of New South Wales (UNSW) to cease the trial of graded exercise therapy for chronic fatigue syndrome, in the face of newly-released evidence from the PACE trial (which UNSW relied upon in this trial). "We are deeply concerned that your trial, UN1111-1180-1073, … Continue reading Response from the Mason Foundation: Petition to stop graded exercise therapy trial

Alem Matthees: how an Australian’s FOI request busted open a UK science scandal

by Sasha Nimmo In September 2016, Queen Mary University of London (QMUL) was compelled to release the data from the 2011 PACE trial, a trial which examined the effect of graded exercise therapy and cognitive behavioural therapy against standard medical care. West Australian Alem Matthees was one of many people who wanted a closer look … Continue reading Alem Matthees: how an Australian’s FOI request busted open a UK science scandal

Uni of South Australia Xbox ‘increasing activity’ trial claims it has patient support

x-box gaming console

by Sasha Nimmo Update 3  September: In June I asked South Australia's ME/CFS Australia (SA) if they were recruiting patients (as indicated by Dr Ferrar), if they have decided to endorse the study yet, what was their opinion on the study not using any criteria (i.e. Fukuda or International Consensus Criteria) and which criteria the organisation endorsed. I also asked … Continue reading Uni of South Australia Xbox ‘increasing activity’ trial claims it has patient support

University of NSW tests graded activity program on mild chronic fatigue syndrome patients

by Sasha Nimmo Australia's University of NSW's Psychiatry Department tested a graded activity program on 25 patients with chronic fatigue syndrome, despite the evidence of harm. Before the study, patients could complete around 4 hours of 'moderate intensity exercise' a week (self-reported) which is an unusually high amount for CFS patients. Exercise was not measured or recorded at … Continue reading University of NSW tests graded activity program on mild chronic fatigue syndrome patients