Difference between Australian chronic fatigue syndrome guidelines and ME

By Sasha Nimmo Australians are having their concerns dismissed by GPs, receiving harmful medical advice, refused insurance claims, refused access to support services, denied access to the Disability Support Pension and the National Disability Insurance scheme. In tens of thousands of cases, they are misdiagnosed or wait decades for a diagnosis. Read these excerpts from … Continue reading Difference between Australian chronic fatigue syndrome guidelines and ME

Emerge Australia given $370,000 government grant

From left: Maria (volunteer), Nola (Emerge's committee of management), Kevin (volunteer), Naomi (Emerge's project officer), John (Emerge's Ambassador) and Sally (Emerge's President) standing in a pub

by Sasha Nimmo Emerge Australia has been given $370,000 by the federal government in a grant for a research symposium, health and well-being surveys and to support people with Myalgic Encephalomyelitis and chronic fatigue syndrome. "We're really focusing on developing and delivering a lot of high quality support services as a result of this funding. We … Continue reading Emerge Australia given $370,000 government grant

Impaired intracellular calcium transfer affecting Natural Killer cells in ME

Bar graphs representing TRPM3 current amplitude at + 100 mV after stimulation with 100 μΜ PregS in CFS/ME patients at just over 5. Healthy controls at around 12.5

by Sasha Nimmo Australian scientists at the National Centre for Neuroimmunlogy and Emerging Diseases at Griffith University published a new paper on reduced intracellular calcium mobilisation in Natural Killer (NK) immune cells and Transient Receptor Potential Melastatin 3 (TRPM3) cation channels. Authors say it 'could suggest potential therapeutic targets and/or prognostic markers'. 'Loss of Transient Receptor … Continue reading Impaired intracellular calcium transfer affecting Natural Killer cells in ME

Friends in Australia’s parliament for people with ME and chronic fatigue syndrome

Parliament House Canberra at dusk

by Sasha Nimmo Three senators have formed a Parliamentary Friends of Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) group in Australia's federal parliament. The Parliamentary Friendship group is co-chaired by Western Australian Greens Senator Jordon Steele-John,  Tasmanian Liberal Senator Jonathan Duniam and Queensland Labor Senator Claire Moore. This group will provide a forum for … Continue reading Friends in Australia’s parliament for people with ME and chronic fatigue syndrome

Australia’s medical research council questioned on ME and CFS committee

Senator Griff at Senate Estimates

By Sasha Nimmo Australia's National Health and Medical Research Council (NHMRC) answered questions from Greens, Centre Alliance and Labor senators at Senate Estimates budget hearings. Senator Griff asked if they would add experts in biomedical research to the ME and CFS advisory committee. Senator Steele-John asked if it would be concerning if a member of … Continue reading Australia’s medical research council questioned on ME and CFS committee

Meet the Scientists: Fane Mensah

Fane Mensah leaning on a railing on a ferry on Sydney Harbour with the Harbour Bridge in the background

by Sasha Nimmo ‘Meet the Scientists’ is a series of interviews with researchers working on ME and chronic fatigue syndrome. We hear about current research directly from scientists and meet the people doing such important work to improve our health. The series will introduce early career researchers through to interviewing scientists and clinicians who have been working … Continue reading Meet the Scientists: Fane Mensah

Mason Foundation explores ME and CFS biobank for Australia

Proposed Mason Foundation research scheme diagram, listing the precentage of where money may go. Details in article.

By Sasha Nimmo Most of Australia's medical research funding for ME and CFS comes from the Mason Foundation, who are currently looking at whether they will fund a biobank or a patient registry for Myalgic Encephalomyelitis and/or chronic fatigue syndrome samples.  Last week the Mason Foundation updated stakeholders on the decision-making process. This is important … Continue reading Mason Foundation explores ME and CFS biobank for Australia