by Sasha Nimmo National Health and Medical Research Council's Chief Executive Officer, Prof Anne Kelso, today released her response the ME and CFS advisory committee's report. Prof Kelso has decided that the NHMRC should develop clinical guidance on ME/CFS. This is a major decision as the current guidelines were condemned by the Senate and organisations … Continue reading Medical council agrees new guidelines are needed
by Sasha Nimmo Australia's Mason Foundation is now calling for research submissions into ME. The grants are for up to $120,000 a year for up to three years. The Mason Foundation grants will support research projects that 'focus on Myalgic encephalomyelitis/chronic fatigue syndrome' and specify that the Canadian or International Consensus Criteria for ME, or the Jason … Continue reading Mason Foundation funding rounds now open
by ME Australia The Mason Foundation, an Australian philanthropic foundation, announced it will invest $1 million in a biobank to collect samples for people with ME and CFS. Samples will be based on self-diagnosis and then confirmed using the Canadian Consensus Criteria (CCC). It will also store samples from healthy people to use as 'controls'. … Continue reading Australian biobank due to open next year
Meet the Scientists: neurodisability researcher and psychologist Dr Elisha Josev from Murdoch Children's Research Institute.
Meet occupational therapists from Australian Catholic University conducting research into ME and CFS.
By ME Australia Australians with Myalgic Encephalomyelitis and chronic fatigue syndrome are having their disability support pension, NDIS, superannuation and other requests for help denied due to the current Australian chronic fatigue syndrome guidelines, published back in 2002. Myalgic Encephalomyelitis affects between 0.4 and 1 per cent of the population, including children, and one quarter … Continue reading Failure to update medical guidelines see people with ME denied disability support
Scientists at Murdoch Children's Research Institute found cognitive tasks use the same amount of effort in healthy adolescents aged 13-18 as those with Paediatric Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
by Sasha Nimmo Outcomes on the remaining recommendations from the National Health and Medical Research Council (NHMRC) ME and CFS advisory committee are expected to be announced in mid-2019. Prof Anne Kelso CEO NHMRC, is deciding whether to release the report ahead of the announcements. "The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Advisory Committee Report to the NHMRC Chief … Continue reading Research Council expects to fund ME and CFS projects in 2020
Andrew gave an impassioned speech at Melbourne's Millions Missing rally, where 50 people gathered on the steps of the State Library.
by Helen Donovan May 12 is Alem Matthee's birthday. Around the world, people with ME, their friends, families and scientists are grateful for Alem's work in getting trial data released, showing that graded exercise therapy and cognitive behavioural therapy did not improve health the way the study's authors claimed. In 2014 Alem filed a Freedom … Continue reading A Mother’s Story: Alem Matthees