Meet the Scientists: neurodisability researcher and psychologist Dr Elisha Josev from Murdoch Children's Research Institute.
Meet the Scientists: Dr Elisha Josev
Tag: ME
Meet the Scientists: Chelsea Bartlett and ACU team
Meet occupational therapists from Australian Catholic University conducting research into ME and CFS.
Failure to update medical guidelines see people with ME denied disability support
By ME Australia Australians with Myalgic Encephalomyelitis and chronic fatigue syndrome are having their disability support pension, NDIS, superannuation and other requests for help denied due to the current Australian chronic fatigue syndrome guidelines, published back in 2002. Myalgic Encephalomyelitis affects between 0.4 and 1 per cent of the population, including children, and one quarter … Continue reading Failure to update medical guidelines see people with ME denied disability support
Teenagers with ME and CFS use same amount of energy to think as healthy kids
Scientists at Murdoch Children's Research Institute found cognitive tasks use the same amount of effort in healthy adolescents aged 13-18 as those with Paediatric Myalgic Encephalomyelitis and Chronic Fatigue Syndrome
Research Council expects to fund ME and CFS projects in 2020
by Sasha Nimmo Outcomes on the remaining recommendations from the National Health and Medical Research Council (NHMRC) ME and CFS advisory committee are expected to be announced in mid-2019. Prof Anne Kelso CEO NHMRC, is deciding whether to release the report ahead of the announcements. "The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Advisory Committee Report to the NHMRC Chief … Continue reading Research Council expects to fund ME and CFS projects in 2020
Millions Missing: Melbourne
Andrew gave an impassioned speech at Melbourne's Millions Missing rally, where 50 people gathered on the steps of the State Library.
A Mother’s Story: Alem Matthees
by Helen Donovan May 12 is Alem Matthee's birthday. Around the world, people with ME, their friends, families and scientists are grateful for Alem's work in getting trial data released, showing that graded exercise therapy and cognitive behavioural therapy did not improve health the way the study's authors claimed. In 2014 Alem filed a Freedom … Continue reading A Mother’s Story: Alem Matthees
Architect Anthony Clarke’s designs for ME
by Anthony Clarke Anthony Clarke of BLOXAS, an architecture practice for empathic and experimental architecture, was contacted by a South Australian woman with ME to design a home for her. His research led him to a screening of 'Unrest' and a friendship with Anna Kerr, who also has ME. Anthony and Anna recently presented at … Continue reading Architect Anthony Clarke’s designs for ME
Greens announce ME and CFS policy
by Sasha Nimmo Senator Jordon Steele-John this week announced the Australian Greens' policy on Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS), planning to commit $15 million to biomedical research, a national summit, better access to the National Disability Insurance Scheme (NDIS) and money for advocacy organisations. This policy is welcomed by the ME and CFS … Continue reading Greens announce ME and CFS policy
Draft report wrongly claims 99% recover from chronic fatigue syndrome and ME
By Sasha Nimmo and ME Australia Australia's National Health and Medical Research Council (NHMRC) called for feedback on their advisory committee's draft report at the end of 2018. The report contained misleading errors, stating 99% of people recover (except in cases lasting more than seven years, the report claims the recovery rate is 50-80%). This … Continue reading Draft report wrongly claims 99% recover from chronic fatigue syndrome and ME