Failure to update medical guidelines see people with ME denied disability support

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By ME Australia Australians with Myalgic Encephalomyelitis and chronic fatigue syndrome are having their disability support pension, NDIS, superannuation and other requests for help denied due to the current Australian chronic fatigue syndrome guidelines, published back in 2002. Myalgic Encephalomyelitis affects between 0.4 and 1 per cent of the population, including children, and one quarter … Continue reading Failure to update medical guidelines see people with ME denied disability support

Teenagers with ME and CFS use same amount of energy to think as healthy kids

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Scientists at Murdoch Children's Research Institute found cognitive tasks use the same amount of effort in healthy adolescents aged 13-18 as those with Paediatric Myalgic Encephalomyelitis and Chronic Fatigue Syndrome

Research Council expects to fund ME and CFS projects in 2020

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by Sasha Nimmo Outcomes on the remaining recommendations from the National Health and Medical Research Council (NHMRC) ME and CFS advisory committee are expected to be announced in mid-2019. Prof Anne Kelso CEO NHMRC, is deciding whether to release the report ahead of the announcements. "The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Advisory Committee Report to the NHMRC Chief … Continue reading Research Council expects to fund ME and CFS projects in 2020

Millions Missing: Melbourne

May 16, 2019 ~ ME news Australia ~ Leave a comment

Andrew gave an impassioned speech at Melbourne's Millions Missing rally, where 50 people gathered on the steps of the State Library.

A Mother’s Story: Alem Matthees

May 8, 2019 ~ ME news Australia ~ 13 Comments

by Helen Donovan May 12 is Alem Matthee's birthday. Around the world, people with ME, their friends, families and scientists are grateful for Alem's work in getting trial data released, showing that graded exercise therapy and cognitive behavioural therapy did not improve health the way the study's authors claimed. In 2014 Alem filed a Freedom … Continue reading A Mother’s Story: Alem Matthees

Architect Anthony Clarke’s designs for ME

April 12, 2019April 23, 2019 ~ ME news Australia ~ 2 Comments

by Anthony Clarke Anthony Clarke of BLOXAS, an architecture practice for empathic and experimental architecture, was contacted by a South Australian woman with ME to design a home for her. His research led him to a screening of 'Unrest' and a friendship with Anna Kerr, who also has ME. Anthony and Anna recently presented at … Continue reading Architect Anthony Clarke’s designs for ME

Greens announce ME and CFS policy

March 31, 2019 ~ ME news Australia ~ 5 Comments

by Sasha Nimmo Senator Jordon Steele-John this week announced the Australian Greens' policy on Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS), planning to commit $15 million to biomedical research, a national summit, better access to the National Disability Insurance Scheme (NDIS) and money for advocacy organisations. This policy is welcomed by the ME and CFS … Continue reading Greens announce ME and CFS policy

Draft report wrongly claims 99% recover from chronic fatigue syndrome and ME

Draft for Public Consultation - report to the NHMRC CEO

March 25, 2019March 25, 2019 ~ ME news Australia ~ 2 Comments

By Sasha Nimmo and ME Australia Australia's National Health and Medical Research Council (NHMRC) called for feedback on their advisory committee's draft report at the end of 2018. The report contained misleading errors, stating 99% of people recover (except in cases lasting more than seven years, the report claims the recovery rate is 50-80%). This … Continue reading Draft report wrongly claims 99% recover from chronic fatigue syndrome and ME

Molecules may convert acute infection into ME

cover of Metabolic Brain Disease Journal, gold, blue and image of brain

March 12, 2019March 12, 2019 ~ ME news Australia ~ Leave a comment

by Sasha Nimmo A paper published in Metabolic Brain Disease by Morris, Maes, Burk and Puri suggests Myalgic Encephalomyelitis develops because of genes responsible for immune responses. Their paper discusses how molecules may convert an acute infection into a state of escalating chronic systemic inflammation. Morris and Maes have written extensively about chronic fatigue syndrome … Continue reading Molecules may convert acute infection into ME

Meet the Scientists: Dr Christopher Armstrong

February 20, 2019February 20, 2019 ~ ME news Australia ~ 4 Comments

Meet the Scientists: Dr Christopher Armstrong is an Australian scientist researching Myalgic Encephalomyelitis (ME). He moved to California late last year to take up a position at the Open Medicine Foundation.