Meet the Scientists: neurodisability researcher and psychologist Dr Elisha Josev from Murdoch Children's Research Institute.
By Professor Sonya Marshall-Gradisnik, Professor Don Staines, Dr Helene Cabanas and the NCNED Team, Griffith University, Queensland, Australia Researchers from the National Centre for Neuroimmunology and Emerging Diseases (NCNED) at Griffith University in Queensland, Australia, have published more than 70 papers on ME and chronic fatigue syndrome. The NCNED host and present at international conferences and Prof … Continue reading Research update from the National Centre for Neuroimmunology and Emerging Diseases
by Sasha Nimmo Outcomes on the remaining recommendations from the National Health and Medical Research Council (NHMRC) ME and CFS advisory committee are expected to be announced in mid-2019. Prof Anne Kelso CEO NHMRC, is deciding whether to release the report ahead of the announcements. "The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Advisory Committee Report to the NHMRC Chief … Continue reading Research Council expects to fund ME and CFS projects in 2020
Andrew gave an impassioned speech at Melbourne's Millions Missing rally, where 50 people gathered on the steps of the State Library.
By Jac Creedon Since 2015, Adelaide Oval in South Australia has been lit up in blue in recognition of ME Awareness. This year, it will be illuminated on Thursday May 9. It has been organised every year by Jac Creedon, who has had ME for 28 years. Jac lives in Adelaide, along with her Jack … Continue reading Adelaide Oval lights up in blue for ME Awareness Week
by Sasha Nimmo On Saturday 18 May a federal election will be held in Australia. This is your chance to write to local House of Representative and Senate candidates to ask them to commit to funding biomedical research into Myalgic Encephalomyelitis, or ME. Below is a sample letter to personalise or to help you write your … Continue reading Write to candidates before the election: letter template
by Sasha Nimmo A charitable trust, the Mason Foundation, is asking researchers to submit proposals for a biobank and patient registry as well as a research project that uses the data and specimens. The trust will grant $200,000 a year for five years for the biobank project, $1 million in total. The Judith Jane Mason & … Continue reading $1m biobank project for Australia
by Sasha Nimmo Senator Jordon Steele-John this week announced the Australian Greens' policy on Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS), planning to commit $15 million to biomedical research, a national summit, better access to the National Disability Insurance Scheme (NDIS) and money for advocacy organisations. This policy is welcomed by the ME and CFS … Continue reading Greens announce ME and CFS policy
by Sasha Nimmo Senior staff from Australia's National Disability Insurance Agency (NDIA) met with Emerge Australia and ME Australia to see how they can better support people who have ME and CFS. Encouragingly, this seems to be the start of a more broad consultation approach. At the meeting, we discussed access to the scheme, how permanent … Continue reading Disability agency consults on ME and CFS
by Sasha Nimmo Australia's Health Minister, Greg Hunt, announced $3 million in medical research funding. In 2018-19 the government will spend $6 billion on Australia’s health and medical research sector. The Minister said funding will 'help researchers develop a better understanding of the cause and condition of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)'. This comes after … Continue reading Australian government announces $3 million for medical research