by Helen Donovan May 12 is Alem Matthee's birthday. Around the world, people with ME, their friends, families and scientists are grateful for Alem's work in getting trial data released, showing that graded exercise therapy and cognitive behavioural therapy did not improve health the way the study's authors claimed. In 2014 Alem filed a Freedom … Continue reading A Mother’s Story: Alem Matthees
UNSW deny Prof Lloyd's CBT/GET trial causes harm to participants and refuses to stop the trial or amend it in any way. The university says the people who are protesting 'harbour resentment against the notion that CFS may have psychological causes', plus continues to defend the PACE trial.
UNSW graded exercise therapy trial under investigation after a petition signed by 702 people asked them to halt harmful treatment.
We asked them to stop the trial and they said 'no'. Australia's Health Minister responds to our petition asking them to cease graded exercise trial on chronic fatigue syndrome patients at UNSW.
More than 700 people signed the petition to ask the Mason Foundation and the University of New South Wales (UNSW) to cease the trial of graded exercise therapy for chronic fatigue syndrome, in the face of newly-released evidence from the PACE trial (which UNSW relied upon in this trial). "We are deeply concerned that your trial, UN1111-1180-1073, … Continue reading Response from the Mason Foundation: Petition to stop graded exercise therapy trial
Southern Cross University (SCU) is running a pilot trial to see if aquatic therapy improves the self-reported wellness scores of patients with ME and CFS.
by Sasha Nimmo Interviewing Prof Andrew Lloyd last year for this story, he explained he was working on an online program of graded exercise therapy (GET) and cognitive behavior therapy (CBT) program at the University of NSW’s Fatigue Clinic. Prof Lloyd described the PACE trial, which evaluated these therapies, as having “reasonably solid data”. The University … Continue reading How the UNSW chronic fatigue syndrome studies use ‘potentially harmful’ guidelines
by Sasha Nimmo Write to the University of NSW and ask them not to allow this trial to proceed: contact the ethics department via email: firstname.lastname@example.org, email@example.com and the study's contact firstname.lastname@example.org . You may wish to also contact the administrator of the Mason Foundation, who are funding the work, email@example.com There is a proposed study/trial starting in 2016 … Continue reading Ask UNSW to cancel CBT/GET training chronic fatigue syndrome study
Why haven't we heard more about PACE's sister study? "The bastards don't want to get better"