by Sasha Nimmo National Health and Medical Research Council's Chief Executive Officer, Prof Anne Kelso, today released her response the ME and CFS advisory committee's report. Prof Kelso has decided that the NHMRC should develop clinical guidance on ME/CFS. This is a major decision as the current guidelines were condemned by the Senate and organisations … Continue reading Medical council agrees new guidelines are needed
by Sasha Nimmo Australia's federal government now has a $3 million grant round open, calling for research into ME and chronic fatigue syndrome. $3 million over three years is a huge increase on previous spending, yet is a tiny proportion of the $9 billion the government is spending on medical research over 10 years. After … Continue reading $3m funding round opens and Senator questions how they will avoid funding harmful therapies
by Sasha Nimmo Outcomes on the remaining recommendations from the National Health and Medical Research Council (NHMRC) ME and CFS advisory committee are expected to be announced in mid-2019. Prof Anne Kelso CEO NHMRC, is deciding whether to release the report ahead of the announcements. "The Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Advisory Committee Report to the NHMRC Chief … Continue reading Research Council expects to fund ME and CFS projects in 2020
by Sasha Nimmo Senior staff from Australia's National Disability Insurance Agency (NDIA) met with Emerge Australia and ME Australia to see how they can better support people who have ME and CFS. Encouragingly, this seems to be the start of a more broad consultation approach. At the meeting, we discussed access to the scheme, how permanent … Continue reading Disability agency consults on ME and CFS
by Sasha Nimmo Australia's Health Minister, Greg Hunt, announced $3 million in medical research funding. In 2018-19 the government will spend $6 billion on Australia’s health and medical research sector. The Minister said funding will 'help researchers develop a better understanding of the cause and condition of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)'. This comes after … Continue reading Australian government announces $3 million for medical research
By Sasha Nimmo Released on the Friday before Christmas, the Australia's National Health and Medical Research Advisory Commission's draft report on Myalgic Encephalomyelitis and Chronic Fatigue Syndrome is open for comment. People and organisations are encouraged to respond to the draft report by noon AEDT, Monday 18 February via the online public consultation portal. The … Continue reading NHMRC draft ME and CFS report asks for feedback
by Sasha Nimmo Australia’s Health Minister, Greg Hunt, listened to people with Myalgic Encephalomyelitis (ME), families, scientists and organisations. Minister Hunt had a second meeting with ME Australia, along with Prof Paul Fisher, head of microbiology at La Trobe University and Dr Heidi Nicholl, Emerge Australia on Thursday. ME Australia and Dr Chris Armstrong first … Continue reading Australia’s Health Minister listening to people with ME
By Sasha Nimmo Australians are having their concerns dismissed by GPs, receiving harmful medical advice, refused insurance claims, refused access to support services, denied access to the Disability Support Pension and the National Disability Insurance scheme. In tens of thousands of cases, they are misdiagnosed or wait decades for a diagnosis. Read these excerpts from … Continue reading Difference between Australian chronic fatigue syndrome guidelines and ME
The governement's ME and CFS advisory committee are one meeting away from releasing their report for feedback. The NHMRC is now listing resources for clinicians which include CBT, exercise and antidepressants.
by Sasha Nimmo The Medical Research Future Fund (MRFF) is holding a national consultation to ask Australians about what the priorities of the fund should be from 2018-2020. The first set of MRFF Priorities expire on 8 November 2018. There is an opportunity for everyone to make a submission using the form on the website. The consultation … Continue reading Last days to have your say: Medical Research Future Fund
