by Sasha Nimmo Millions Missing is a global movement calling for action for ME, an underfunded and ignored disease. Australia will host its largest number of events yet! Local days of action will be held in Australia in Sydney, Melbourne, Perth and Cairns. Millions Missing was set up by ME Action and Australia first held … Continue reading Millions Missing events
by Helen Donovan May 12 is Alem Matthee's birthday. Around the world, people with ME, their friends, families and scientists are grateful for Alem's work in getting trial data released, showing that graded exercise therapy and cognitive behavioural therapy did not improve health the way the study's authors claimed. In 2014 Alem filed a Freedom … Continue reading A Mother’s Story: Alem Matthees
by Sasha Nimmo A charitable trust, the Mason Foundation, is asking researchers to submit proposals for a biobank and patient registry as well as a research project that uses the data and specimens. The trust will grant $200,000 a year for five years for the biobank project, $1 million in total. The Judith Jane Mason & … Continue reading $1m biobank project for Australia
by Sasha Nimmo Researchers at the Murdoch Children's Research Institute in Melbourne confirmed that paediatric chronic fatigue syndrome (Fukuda criteria) causes significant disability and little is known about how common the condition is or how it is currently managed in Australia. More than half of children have to wait a year or longer before receiving … Continue reading Children with chronic fatigue syndrome often wait more than a year for diagnosis
by Sasha Nimmo Emerge Australia is hosting an international research symposium on the biological basis, diagnosis, treatment and managment of Myalgic Encephalomylitis and chronic fatigue syndrome in Geelong (near Melbourne), Australia. Parts of the symposium will be live-streamed here. On Wednesday 13 March, Griffith University's Professor Sonya Marshall-Gradisnik and Professor Donald Staines will chair a … Continue reading Australia hosts research symposium on ME and chronic fatigue syndrome
Meet the Scientists: Dr Christopher Armstrong is an Australian scientist researching Myalgic Encephalomyelitis (ME). He moved to California late last year to take up a position at the Open Medicine Foundation.
Prof Don Staines Professor Don Staines is co-director of the National Centre for Neuroimmunology and Emerging Diseases (NCNED) at Australia’s Griffith University, with Professor Sonya Marshall-Gradisnik. Together they have published more than 70 peer-reviewed papers on ME and chronic fatigue syndrome. Professor Staines is an author of the International Consensus Criteria for ME. By Sasha … Continue reading Meet the Scientists: Prof Don Staines
by Kathy Collett Kathy Collett has lived with Myalgic Encephalomyelitis for more than 30 years. Frustrated by the lack of knowledge and dismissive attitude of doctors, Kathy conducted her own research to see what she could do to improve her health. Pre-internet, this was difficult but Kathy persisted and travelled overseas for treatment which helped … Continue reading The Lost Years: a personal journey
By Sasha Nimmo Australians are having their concerns dismissed by GPs, receiving harmful medical advice, refused insurance claims, refused access to support services, denied access to the Disability Support Pension and the National Disability Insurance scheme. In tens of thousands of cases, they are misdiagnosed or wait decades for a diagnosis. Read these excerpts from … Continue reading Difference between Australian chronic fatigue syndrome guidelines and ME
By Sasha Nimmo An international collaboration of scientists, including Fane Mensah, Dr Jo Cambridge and Australian Dr Chris Armstrong investigated the relationship between CD24 expression and B cell maturation and found CD24 expression on B cells is related to energy metabolism and that its role differs between B cell subsets. ‘CD24 Expression and B Cell … Continue reading Study examines link between immune dysfunction and metabolism in ME
