We asked them to stop the trial and they said 'no'. Australia's Health Minister responds to our petition asking them to cease graded exercise trial on chronic fatigue syndrome patients at UNSW.
By Sasha Nimmo Australia's University of New South Wales (UNSW) is trialling an education module for health professionals. The trial module treats chronic fatigue syndrome patients with graded exercise therapy and cognitive behaviour therapy (GET/CBT), despite the evidence showing these therapies have no benefit and may cause permanent harm. If you object to this trial, sign the … Continue reading Petition: UNSW must not ignore evidence-based science
by Sasha Nimmo Australia's University of NSW's Psychiatry Department tested a graded activity program on 25 patients with chronic fatigue syndrome, despite the evidence of harm. Before the study, patients could complete around 4 hours of 'moderate intensity exercise' a week (self-reported) which is an unusually high amount for CFS patients. Exercise was not measured or recorded at … Continue reading University of NSW tests graded activity program on mild chronic fatigue syndrome patients
by Sasha Nimmo Write to the University of NSW and ask them not to allow this trial to proceed: contact the ethics department via email: email@example.com, firstname.lastname@example.org and the study's contact email@example.com . You may wish to also contact the administrator of the Mason Foundation, who are funding the work, firstname.lastname@example.org There is a proposed study/trial starting in 2016 … Continue reading Ask UNSW to cancel CBT/GET training chronic fatigue syndrome study
Australia needs to leave behind ME/CFS and CFS/ME. Why is it important to use ME and CFS?
by Sasha Nimmo In a radio interview with The Wire, Senator Scott Ludlam says Australia shouldn’t be funding research into totally inappropriate exercise regimes or therapy, “these remedies are actually counter-productive and dangerous”. The Wire, an Australian community radio current affairs program, also interviewed Emerge Australia’s president, Sally Missing, and ME patient Sasha Nimmo. The … Continue reading Australia shouldn’t fund ‘totally inappropriate’ CBT and GET
by Sasha Nimmo Senator asks medical research council about ‘remarkably small amount of funding since 2000’ and if they are funding graded exercise therapy (GET) or cognitive behavioural therapy (CBT) for ME and chronic fatigue syndrome. This is the third article in the series. Here is the first (November 2015) and the second (February 2016) Australia … Continue reading Australian Health Department pins its hopes on overseas research instead of funding our own
by Sasha Nimmo Large controversial UK study refusing to release data: PACE trial The authors of a £5 million trial into cognitive behavior therapy and graded exercise therapy again refused to release the data to scientists who wanted to examine it. The Queen Mary University of London believe it to be exempt from Freedom of … Continue reading UK study refuses to release data: PACE trial
by Sasha Nimmo Most of the $2.4 million in research the government says is for ME or CFS is spent on research into psychology, exercise or for other conditions such as hepatitis C. No studies funded in a decade. This the second story in the series, here is the first. For Australia’s 94,000 to 242,000 … Continue reading Australian Health Department answers questions on ME