Failure to update medical guidelines see people with ME denied disability support

By ME Australia Australians with Myalgic Encephalomyelitis and chronic fatigue syndrome are having their disability support pension, NDIS, superannuation and other requests for help denied due to the current Australian chronic fatigue syndrome guidelines, published back in 2002.  Myalgic Encephalomyelitis affects between 0.4 and 1 per cent of the population, including children, and one quarter … Continue reading Failure to update medical guidelines see people with ME denied disability support

Write to candidates before the election: letter template

by Sasha Nimmo On Saturday 18 May a federal election will be held in Australia. This is your chance to write to local House of Representative and Senate candidates to ask them to commit to funding biomedical research into Myalgic Encephalomyelitis, or ME.  Below is a sample letter to personalise or to help you write your … Continue reading Write to candidates before the election: letter template

Australian government announces $3 million for medical research

by Sasha Nimmo Australia's Health Minister, Greg Hunt, announced $3 million in medical research funding. In 2018-19 the government will spend $6 billion on Australia’s health and medical research sector. The Minister said funding will 'help researchers develop a better understanding of the cause and condition of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)'. This comes after … Continue reading Australian government announces $3 million for medical research

Draft report wrongly claims 99% recover from chronic fatigue syndrome and ME

Draft for Public Consultation - report to the NHMRC CEO

By Sasha Nimmo and ME Australia Australia's National Health and Medical Research Council (NHMRC) called for feedback on their advisory committee's draft report at the end of 2018. The report contained misleading errors, stating 99% of people recover (except in cases lasting more than seven years, the report claims the recovery rate is 50-80%). This … Continue reading Draft report wrongly claims 99% recover from chronic fatigue syndrome and ME