by Sasha Nimmo Australia’s Health Minister, Greg Hunt, listened to people with Myalgic Encephalomyelitis (ME), families, scientists and organisations. Minister Hunt had a second meeting with ME Australia, along with Prof Paul Fisher, head of microbiology at La Trobe University and Dr Heidi Nicholl, Emerge Australia on Thursday. ME Australia and Dr Chris Armstrong first … Continue reading Australia’s Health Minister listening to people with ME
By Sasha Nimmo Australians are having their concerns dismissed by GPs, receiving harmful medical advice, refused insurance claims, refused access to support services, denied access to the Disability Support Pension and the National Disability Insurance scheme. In tens of thousands of cases, they are misdiagnosed or wait decades for a diagnosis. Read these excerpts from … Continue reading Difference between Australian chronic fatigue syndrome guidelines and ME
Macquarie University are recruiting people with chronic fatigue syndrome, fibromyalgia, gastrointestinal disorders and multiple chemical sensitivity for a study measuring somatic symptoms, hypochondria, anxiety and depression, catastophising and co-morbid diseases.
by Sasha Nimmo Emerge Australia has been given $370,000 by the federal government in a grant for a research symposium, health and well-being surveys and to support people with Myalgic Encephalomyelitis and chronic fatigue syndrome. "We're really focusing on developing and delivering a lot of high quality support services as a result of this funding. We … Continue reading Emerge Australia given $370,000 government grant
by Sasha Nimmo Three senators have formed a Parliamentary Friends of Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) group in Australia's federal parliament. The Parliamentary Friendship group is co-chaired by Western Australian Greens Senator Jordon Steele-John, Tasmanian Liberal Senator Jonathan Duniam and Queensland Labor Senator Claire Moore. This group will provide a forum for … Continue reading Friends in Australia’s parliament for people with ME and chronic fatigue syndrome
by Sasha Nimmo The petition against the 'increasing exercise' trial using Xbox video gaming at the University of South Australia (UniSA) was presented to the UniSA and to the President of the ME/CFS Australia in South Australia (ME/CFS SA), Penelope McMillan several months ago. More than 320 people signed the petition on MEAction. The trial … Continue reading Did the petition stop the Xbox exercise trial?
By Sasha Nimmo Australia's National Health and Medical Research Council (NHMRC) answered questions from Greens, Centre Alliance and Labor senators at Senate Estimates budget hearings. Senator Griff asked if they would add experts in biomedical research to the ME and CFS advisory committee. Senator Steele-John asked if it would be concerning if a member of … Continue reading Australia’s medical research council questioned on ME and CFS committee
by Mary Macrae Sydney ME community members marked #MillionsMissing with a screening of the film 'Unrest' in Newtown, hosted by Shark Island Institute and people with ME: Barbara, Melody and Maya. The audience of around 110 people heard Barbara and Melody speak to their experience of ME, and what it has meant for them having … Continue reading Millions Missing Sydney
Photos by Susan Fairlie Hall On May 12 2018, the Roundhouse, Moores Building and Victoria Hall in Fremantle, Western Australia, were lit up in blue to mark ME Awareness Day.
By Kathy Collett The #MillionsMissing event for Western Australia was held for the first time this year. The location was in the port city of Fremantle, approximately 20 kms from Perth in Pioneer Park conveniently located opposite the Fremantle Railway Station. Prior to the event, Rachel Pemberton from the Fremantle Council had spoken at one … Continue reading Millions Missing Fremantle