Greens announce ME and CFS policy

by Sasha Nimmo Senator Jordon Steele-John this week announced the Australian Greens' policy on Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS), planning to commit $15 million to biomedical research, a national summit, better access to the National Disability Insurance Scheme (NDIS) and money for advocacy organisations. This policy is welcomed by the ME and CFS … Continue reading Greens announce ME and CFS policy

Children with chronic fatigue syndrome often wait more than a year for diagnosis

young boy in blue t-shirt lying on a couch with head on a cushion looking pale and unwell

by Sasha Nimmo Researchers at the Murdoch Children's Research Institute in Melbourne confirmed that paediatric chronic fatigue syndrome (Fukuda criteria) causes significant disability and little is known about how common the condition is or how it is currently managed in Australia. More than half of children have to wait a year or longer before receiving … Continue reading Children with chronic fatigue syndrome often wait more than a year for diagnosis

Australia hosts research symposium on ME and chronic fatigue syndrome

by Sasha Nimmo Emerge Australia is hosting an international research symposium on the biological basis, diagnosis, treatment and managment of Myalgic Encephalomylitis and chronic fatigue syndrome in Geelong (near Melbourne), Australia. Parts of the symposium will be live-streamed here. On Wednesday 13 March, Griffith University's Professor Sonya Marshall-Gradisnik and Professor Donald Staines will chair a … Continue reading Australia hosts research symposium on ME and chronic fatigue syndrome

Difference between Australian chronic fatigue syndrome guidelines and ME

By Sasha Nimmo Australians are having their concerns dismissed by GPs, receiving harmful medical advice, refused insurance claims, refused access to support services, denied access to the Disability Support Pension and the National Disability Insurance scheme. In tens of thousands of cases, they are misdiagnosed or wait decades for a diagnosis. Read these excerpts from … Continue reading Difference between Australian chronic fatigue syndrome guidelines and ME

Australia’s medical research council questioned on ME and CFS committee

Senator Griff at Senate Estimates

By Sasha Nimmo Australia's National Health and Medical Research Council (NHMRC) answered questions from Greens, Centre Alliance and Labor senators at Senate Estimates budget hearings. Senator Griff asked if they would add experts in biomedical research to the ME and CFS advisory committee. Senator Steele-John asked if it would be concerning if a member of … Continue reading Australia’s medical research council questioned on ME and CFS committee

Brain differences shown in chronic fatigue syndrome (Fukuda) study

diagram showing more of the brain lit up compared to controls

by Sasha Nimmo Scientists at Queensland's National Centre for Neuroimmunology and Emerging Diseases, Griffith University found obvious differences between the brains of patients with chronic fatigue syndrome and healthy controls, when examined using magnetic resonance imaging (MRI) during an attention test. The study examined 43 people with chronic fatigue syndrome (Fukuda criteria) and 26 healthy … Continue reading Brain differences shown in chronic fatigue syndrome (Fukuda) study

Meet the Scientists: Fane Mensah

Fane Mensah leaning on a railing on a ferry on Sydney Harbour with the Harbour Bridge in the background

by Sasha Nimmo ‘Meet the Scientists’ is a series of interviews with researchers working on ME and chronic fatigue syndrome. We hear about current research directly from scientists and meet the people doing such important work to improve our health. The series will introduce early career researchers through to interviewing scientists and clinicians who have been working … Continue reading Meet the Scientists: Fane Mensah

Mason Foundation explores ME and CFS biobank for Australia

Proposed Mason Foundation research scheme diagram, listing the precentage of where money may go. Details in article.

By Sasha Nimmo Most of Australia's medical research funding for ME and CFS comes from the Mason Foundation, who are currently looking at whether they will fund a biobank or a patient registry for Myalgic Encephalomyelitis and/or chronic fatigue syndrome samples.  Last week the Mason Foundation updated stakeholders on the decision-making process. This is important … Continue reading Mason Foundation explores ME and CFS biobank for Australia

Boost for people with ME and chronic fatigue syndrome thanks to Parliament

Senator Anne Urquhart reading a motion in the Senate chamber

by Sasha Nimmo The Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS) patient and research communities are delighted the Australian parliament officially recognise the urgent need for biomedical research in the field. Senator Anne Urquhart, a Tasmanian Labor senator, (on behalf of her colleague Senator Helen Polley) and Senator Stirling Griff, a Centre Alliance senator … Continue reading Boost for people with ME and chronic fatigue syndrome thanks to Parliament