By ME Australia Australians with Myalgic Encephalomyelitis and chronic fatigue syndrome are having their disability support pension, NDIS, superannuation and other requests for help denied due to the current Australian chronic fatigue syndrome guidelines, published back in 2002. Myalgic Encephalomyelitis affects between 0.4 and 1 per cent of the population, including children, and one quarter … Continue reading Failure to update medical guidelines see people with ME denied disability support
Category: Emerge Australia
Architect Anthony Clarke’s designs for ME
by Anthony Clarke Anthony Clarke of BLOXAS, an architecture practice for empathic and experimental architecture, was contacted by a South Australian woman with ME to design a home for her. His research led him to a screening of 'Unrest' and a friendship with Anna Kerr, who also has ME. Anthony and Anna recently presented at … Continue reading Architect Anthony Clarke’s designs for ME
Disability agency consults on ME and CFS
by Sasha Nimmo Senior staff from Australia's National Disability Insurance Agency (NDIA) met with Emerge Australia and ME Australia to see how they can better support people who have ME and CFS. Encouragingly, this seems to be the start of a more broad consultation approach. At the meeting, we discussed access to the scheme, how permanent … Continue reading Disability agency consults on ME and CFS
Australian government announces $3 million for medical research
by Sasha Nimmo Australia's Health Minister, Greg Hunt, announced $3 million in medical research funding. In 2018-19 the government will spend $6 billion on Australia’s health and medical research sector. The Minister said funding will 'help researchers develop a better understanding of the cause and condition of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS)'. This comes after … Continue reading Australian government announces $3 million for medical research
Australia hosts research symposium on ME and chronic fatigue syndrome
by Sasha Nimmo Emerge Australia is hosting an international research symposium on the biological basis, diagnosis, treatment and managment of Myalgic Encephalomylitis and chronic fatigue syndrome in Geelong (near Melbourne), Australia. Parts of the symposium will be live-streamed here. On Wednesday 13 March, Griffith University's Professor Sonya Marshall-Gradisnik and Professor Donald Staines will chair a … Continue reading Australia hosts research symposium on ME and chronic fatigue syndrome
Emerge Australia given $370,000 government grant
by Sasha Nimmo Emerge Australia has been given $370,000 by the federal government in a grant for a research symposium, health and well-being surveys and to support people with Myalgic Encephalomyelitis and chronic fatigue syndrome. "We're really focusing on developing and delivering a lot of high quality support services as a result of this funding. We … Continue reading Emerge Australia given $370,000 government grant
Australian government’s ME and CFS advisory committee
By Sasha Nimmo Australia's National Health and Medical Research Council (NHMRC) appointed group of medical professionals and people representing people with Myalgic Encephalomyelitis and chronic fatigue syndrome to a ME and CFS advisory committee. The committee, who have begun meeting, will advise the government on current research, gaps in research and whether the 2002 clinical … Continue reading Australian government’s ME and CFS advisory committee