Medical council agrees new guidelines are needed

NHRMC letterhead with logo

by Sasha Nimmo National Health and Medical Research Council's Chief Executive Officer, Prof Anne Kelso, today released her response the ME and CFS advisory committee's report. Prof Kelso has decided that the NHMRC should develop clinical guidance on ME/CFS. This is a major decision as the current guidelines were condemned by the Senate and organisations … Continue reading Medical council agrees new guidelines are needed

$3m funding round opens and Senator questions how they will avoid funding harmful therapies

by Sasha Nimmo Australia's federal government now has a $3 million grant round open, calling for research into ME and chronic fatigue syndrome. $3 million over three years is a huge increase on previous spending, yet is a tiny proportion of the $9 billion the government is spending on medical research over 10 years. After … Continue reading $3m funding round opens and Senator questions how they will avoid funding harmful therapies

Mason Foundation funding rounds now open

Scientist wearing lab coat and gloves sitting at bench with equipment

by Sasha Nimmo Australia's Mason Foundation is now calling for research submissions into ME. The grants are for up to $120,000 a year for up to three years. The Mason Foundation grants will support research projects that 'focus on Myalgic encephalomyelitis/chronic fatigue syndrome' and specify that the Canadian or International Consensus Criteria for ME, or the Jason … Continue reading Mason Foundation funding rounds now open

Failure to update medical guidelines see people with ME denied disability support

By ME Australia Australians with Myalgic Encephalomyelitis and chronic fatigue syndrome are having their disability support pension, NDIS, superannuation and other requests for help denied due to the current Australian chronic fatigue syndrome guidelines, published back in 2002.  Myalgic Encephalomyelitis affects between 0.4 and 1 per cent of the population, including children, and one quarter … Continue reading Failure to update medical guidelines see people with ME denied disability support

Research update from the National Centre for Neuroimmunology and Emerging Diseases

By Professor Sonya Marshall-Gradisnik, Professor Don Staines, Dr Helene Cabanas and the NCNED Team, Griffith University, Queensland, Australia Researchers from the National Centre for Neuroimmunology and Emerging Diseases (NCNED) at Griffith University in Queensland, Australia, have published more than 70 papers on ME and chronic fatigue syndrome. The NCNED host and present at international conferences and Prof … Continue reading Research update from the National Centre for Neuroimmunology and Emerging Diseases

Disability organisations ask for feedback on UN convention

Disabled People’s Organisations Australia is consulting with people with disabilities via a survey seeking feedback. The survey is open until May 31, 2019. Disabled People's Organisations Australia (DPOA) is an alliance of bodies including People With Disability Australia, National Ethnic Disability Alliance, First Peoples Disability Network and Women With Disabilities Australia. DPOA says this survey is an opportunity for people … Continue reading Disability organisations ask for feedback on UN convention